Tonawanda News — That adds up. That adds up a lot. And we wanted to be as close as humanly possible to him, a further consideration we weren’t really sure how to juggle in the maze of medical information and potential costs. That’s not the kind of thing you want to have to think about when you’re also hearing about all the awful things that could happen to your infant son on the operating table.
Then my son’s cardiologist told us about Ronald McDonald House.
For a donation the fraction of a hotel bill (and actually no one is turned away due to cost) we were able to stay very close to the hospital, in an environment where many people knew all too well what we were going through. In the end, we stayed at the Rochester Ronald McDonald House for five days.
It’s not overstating the case to say that it was a godsend: a comfortable, quiet place to actually rest away from the hubbub of the hospital. (I have nothing but good things to say about Golisano Children’s Hospital, but no hospital is going to be a very restful locale.) They even fed us a number of times, a well-received break from cafeteria fare. (My husband still remembers the pancakes served to him by a Girl Scout troop one morning as he returned from a long, exhausting night staying at Jimmy’s bedside.)
And there were families who’d been there for weeks. Months. Imagine that. Imagine what would have happened to those families if RMDH wasn’t there. It’s no less true of those at the Buffalo house than the Rochester one.
Kabala, who helps care for her four grandchildren, can imagine it too.
“You don’t know when you’re going to need those services,” she said. “You just don’t.”