Tonawanda News

Columns

February 21, 2013

GUEST VIEW: Care for those who need it most

Tonawanda News — As I assume the mantle of leadership at Niagara Cerebral Palsy, I am humbled to have the unwavering support of our board of directors, including our new president Dr. Salvatore Passanese from Niagara County Community College. The members of our board sacrifice their time and are one hundred percent committed to serving some of our most vulnerable citizens in our community – the developmentally disabled.

I also would be remiss if I did not acknowledge the dedication and commitment of our tremendous staff that provide the developmentally disabled with such compassionate care.

Rather than communicate anecdotally about the dedication and commitment of our board and staff, I would like to share a couple of real-life stories. Don Napoleon has served on our agency’s board for the past 22 years. His daughter, Becky started in our pre-school special education program when she was 3 and through the years has received physical, occupational and speech therapy. Becky is 31 now and according to her father has maintained the same infectious smile since she arrived at our agency all those years ago.

As Don will tell you, Becky is simply trapped inside a body that doesn’t work. She cannot speak and goes about her day in a powered wheel chair. She brings home a paycheck through a work program at our Community Vocational Rehabilitation Center. The paycheck Becky earns every two weeks from the center fills her with great pride.

Don Napoleon serves on our board because he is his daughter’s voice. It’s easy to sweep the developmentally disabled under the proverbial rug, especially when it comes to the legislative process. The fact is, programs and services for the developmentally disabled are in jeopardy every budget cycle. Our board can never rest or be content because of this threat.

Helen White’s son Darrell has been in our residential services program since he was 14; Darrell is now 32 and currently lives at our Ward Road residential home. The residents at Ward Road have typically been a younger group and like Darrell, are in their 20s and 30s.

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